Resources by Disease

Resource Guide


Brain Cancer

The American Brain Tumor Association
www.abta.org
This site holds brain tumor information, explanations for treatment, support resources and updates on research.

www.abta.org/brain-tumor-treatment/brain-tumor-support
Within the American Brain Tumor Association Website, find help in their "Comfort and Resources" section. Link here to read other people's stories of hope, get information about managing side effects and symptoms, and connect to a pen pal.

National Brain Tumor Foundation
www.braintumor.org
This non-profit health organization provides information and support to brain tumor patients, family members, and health care professionals.


Breast Cancer

Breast Cancer Resource Committee (BCRC)
2005 Belmont St. NW
Washington, DC 20009
202-261-3518
BCRC is dedicated to educating and supporting the African-American community through a broad-based breast cancer awareness campaign that includes a variety of initiatives. This web site provides more information about their organization and initiatives and other services they provide with regards to breast cancer.

Celebrating Life-Wellness
www.celebratinglife.org
The Celebrating Life Foundation is one of the leading foundations in the nation that promote breast cancer awareness specifically targeting African American women and women of color. Their site provides information about breast cancer, screenings, events and support groups throughout the country.

National Breast Cancer Coalition (NBCC)
www.stopbreastcancer.org or www.natlbcc.org
1707 L Street NW
Washington, DC 20036
(202) 296-7477
(202) 265-6854 (fax)
This coalition is dedicated to the eradication of breast cancer by action, policy, and advocacy. Their site provides details on the group's legislative activities, , advocacy training, and public policy initiatives. Information is included about members of Congress who have been supportive of NBCC's goals.

Susan G. Komen Breast Cancer Foundation
www.Komen.org
The Komen Foundation's mission is to eradicate breast cancer as a life threatening disease through research, education, screening and treatment. Their web site provides information on research, upcoming events, where to get additional information about breast cancer and how to access community support for patients and families.

Mothers Supporting Daughters with Breast Cancer
www.mothersdaughters.org
21710 Bayshore Road
Chestertown, MD 21620-4401
(410) 778-1982.
This organization is designed to help mothers who have daughters battling breast cancer. Support services are provided free of charge and include contacts with volunteers through email, letters and phone calls as well as a variety of special publications.

SHARE: Self-help for Women with Breast or Ovarian Cancer
www.sharecancersupport.org
1501 Broadway, Suite 704A
New York, NY 10036
Toll-free hotline: (866) 891-2392
SHARE is a non-profit organization providing information lines in both English and Spanish for breast and ovarian cancer. They offer information, programs and other resources and support.

Y-Me National Breast Cancer Organization - Capitol Area
www.y-me.org
(703) 461-9616
This organization provides general information about breast cancer support services, information on screening and detection, information for men and women with breast cancer, and information for family members and loved ones. Additionally they provide support group services, information and advocacy.


Colon Cancer

Colon Cancer Alliance (CCA)
www.ccalliance.org
This not-for-profit group is dedicated to finding a cure for and increasing awareness of colorectal cancer. Information on the website includes patient support, education and resources, news and research, and advocacy.


Leukemia/Lymphoma

Lymphoma Research Foundation of America
www.lymphoma.org
This site provides educational and emotional support programs for lymphoma patients and their families.

The Leukemia & Lymphoma Society
www.leukemia.org
The Leukemia & Lymphoma Society's mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life of patients and their families. Their quite comprehensive web site provides patient aid, family support, and informational resources geared specifically for those with blood-related cancers.


Lung Cancer

American Lung Association of Virginia, Northern Virginia Office

9735 Main Street
Fairfax, VA 22031
(703) 591-4131
(703) 591-0082 (fax)
Email: northern@lungva.org

American Lung Association of Maryland
1840 York Rd., Suite M
Timonium, MD 21093-5156
(410) 560-2120
(800) LUNG-USA (MD only)
(410) 560-0829 (fax)
Email: lungmd@lunginfo.org

Lung Cancer Alliance
www.lungcanceralliance.org
Lung Cancer Alliance’s mission is to lead the movement to reverse decades of stigma and neglect by empowering those with or at risk for the disease, elevating awareness, and changing health policy. The organization also provides information about risk and screening and an online support community.

This section of the site serves as a gateway to lung cancer resources for patients and their families. There are resources concerning care, support, treatment, tests, and procedures for lung cancer.

www.lungcanceralliance.org/get-information/lung-cancer-online.html


Gynecological Cancers

American College of Obstetrics and Gynecology
www.acog.org
This organization serves to promote patient education and serves as an advocate for quality health care in women.

Corrine Boyer Fund
620 University Avenue
Toronto, CA M5G 2L7
(415) 971-6888
Email: cbf@cancercare.on.ca
The Corrine Boyer Fund was established in 1996 to address the neglect surrounding ovarian cancer. Founded by Patrick Boyer in memory of his wife, Corrine, the fund has 2 missions: raising awareness about cancer of the ovary and increasing financial and educational resources to medial and personal efforts to prevent and successfully treat ovarian cancer.

The Sandra G. Davis Ovarian Cancer Research Program
1515 Holcombe Boulevard
Houston, TX 77030
(713) 792-2765
This research program was established in 1996 to develop effective screening methods and a cure for ovarian cancer through innovative research into causes, prevention, detection, and treatment. It is comprised of clinical care, community relations, and research. For more information, please contact Raana Burnazian, Community Relations Coordinator at the address above.

Ovarian Cancer Familial Registry
www.ovariancancer.com

1-800-OVARIAN
Roswell Park Cancer Institute
Elm and Carlton Streets
Buffalo, NY 14263
The registry tracks families with a history of ovarian cancer, offers a help line, education, information, and peer support for women with high risk (family history) of ovarian cancer.

National Cervical Cancer Coalition
www.nccc-online.org

This site distributes information on cervical cancer, provides support services for women and family members, and assists in efforts related to cervical cancer disease research.

National Ovarian Cancer Coalition (NOCC)
www.ovarian.org
2335 East Atlantic Boulevard, Suite 401
Pompano Beach, FL 33062
888-OVARIAN
NOCC is a national membership organization with state chapters. It promotes awareness and education for the general public and medical community and funding for research to find an early detection mechanism. Offers an informational packet containing a variety of information about ovarian cancer issues and resources.

Ovarian Cancer National Alliance
www.ovariancancer.org

1627 K Street, NW 12th floor
Washington, DC 20006
(202) 331-1332
The Ovarian Cancer National Alliance's purpose is to increase public and professional understanding of ovarian cancer, and to advocate for more effective diagnostics, treatments, and cure. Available materials include awareness information and national policy issue papers.

Ovarian Email Support Group
This email support group provides survivors, families, and others an opportunity to exchange information and support on a daily basis. However, please note that this list is not monitored for medical accuracy. You can subscribe at http://www.acor.org, or send email to: listserv@acor.org (Leave subject area blank or put a dash (-). In message area, type: subscribe ovarian First Name Last Name.)

The Ovarian Cancer Research Fund, INC (OCRF)
One Pennsylvania Plaza, Suite 1610
New York, NY 10119
(800) 873-9569
Email: jlb@mxbhlny.com
OCRF is a not-for-profit organization dedicated to advancing and supporting laboratory and clinical research that promotes the development of new techniques for early detection, screening, and treatment of ovarian cancer. It also provides educational outreach programs and public awareness projects, including videos about ovarian cancer and resource materials.

SHARE: Self-help for Women with Breast or Ovarian Cancer
www.sharecancersupport.org

1501 Broadway, Suite 1720
New York, NY 10036
(212) 719-1204
SHARE is a non-profit organization providing information lines in both English and Spanish for breast and ovarian cancer. They offer information, programs and other resources and support.

Women's Cancer Network: Gynecologic Cancer Foundation (GCF)
www.wcn.org

401 N. Michigan Avenue
Chicago, IL 60611
800-444-4441
GCF is a not-for-profit fund-raising organization whose purpose is to support ovarian cancer research, training of cancer specialists in lab research, and to promote a variety of programs in education and public awareness of gynecologic cancers. Individuals can obtain a list of nearby specialists in gynecologic oncology, a nationwide directory of all Society of Gynecologic Oncologists members, and informational literature.


Male Genital and Urinary Cancers

American Urological Association
https://www.auanet.org

Phone: 410-689-3700
Email: aua@AUAnet.org

AUA is dedicated to education, research, and advocacy surrounding urology. Their website provides professional resources for oncologists, while their foundation website - www.urologyhealth.org - includes patient education resources.

Us Too International, Inc.
www.ustoo.com

Us Too is a prostate cancer support group organization whose goals are to increase awareness in the community, provide information about treatment and disease, and to offer support groups to men who have been diagnosed. Additionally they offer support groups for women whose loved ones are suffering from prostate cancer. They provide the location of groups in every area of the US and Canada, and the name of the appropriate contact person.


Oral, Head and Neck Cancers

Oral Cancer Information Center
www.oralcancer.org

This is a resource for professionals as well as the general public. It is designed to bring information on topics related to oral cancer into a single site.

Support for People with Oral, Head, and Neck Cancer, Inc.
www.spohnc.org

This is a patient-directed, self help organization dedicated to meeting the needs of oral, head, and neck cancer.


Skin Cancer

Melanoma Patients Information Page
www.mpip.org

This site provides patients with information and support on melanoma.

The Skin Cancer Foundation
www.skincancer.org

The Skin Cancer Foundation is the only national and international organization that is concerned exclusively with the world's most common malignancy -- cancer of the skin. Their web site provides information on how to perform a self-examination, and more detailed information about the three types of skin cancer, melanoma, basal cell and squamous cell, including presentation of various treatment options.