Survivorship Resources

 

 

Advocacy

Cancervive
www.cancervive.org
Provides support, public advocacy, and education, as well as inspirational stories, for cancer survivors.

The Children's Cause for Cancer Advocacy
www.childrenscause.org
National advocacy group with a mission of stimulating research and addressing the needs of cancer survivors. Provides up to date changes in policies and issues relevant to survivors.

Back to top

Counseling and Support

The Cancer Survivors Network
www.acscsn.org
Provides a strong community support group complete with discussion boards and personal web pages regarding cancer and survivorship.

CancerCare
www.cancercare.org
National nonprofit that provides free, professional support and counseling for anyone affected by cancer.

Group Loop
http://grouploop.org
A program of The Wellness Community, Group Loop provides a professionally moderated and mentored online support groups and forums geared towards teens and young adults affected by cancer.

I'm Too Young For This! Cancer Foundation
http://imtooyoungforthis.org
Interactive website geared towards young adults that serves as a global community support group.

OncoChat
www.oncochat.org
Online real-time chatting service and global community for those whose lives have been affected by cancer.

Planet Cancer
www.planetcancer.org
A community network for young adults that make cancer information both educational and appealing by including cancer comics, advice, "cancertainment," news, and much more.

Special Love
www.speciallove.org
Non-profit organization focused on helping childhood cancer survivors and their families enjoy life by providing support, camps, weekend retreats, and other community based services.

Back to top

Education and Careers

Cancer and Careers
http://cancerandcareers.org
Informative website geared towards working women with information for both employees and employers on balancing having cancer and maintaining a successful career.

National Center for Learning Disabilities
www.ncld.org
Organization committed to helping children, parents, and educators provide those with learning disabilities every opportunity to succeed in school, work and life.

Social Security Administration
www.ssa.gov
An institution of the federal government, the Social Security Administration is a valuable resource to find information and forms on disability compensation, job opportunities, and other employment related content.

Office of Special Education and Rehabilitative Services
www.ed.gov
Government initiative devoted to improving the results and outcomes for those with educational special needs.

Outlook Portal
www.outlook-life.org
Provides necessary information from insurance and finances to education and job concerns for survivors of childhood cancers and their parents.

Back to top

Fertility

Fertile Hope
www.fertilehope.org
Organization providing reproductive information for cancer survivors and support for those at risk of infertility.

Fertility Today
http://fertilitytoday.org
Fertility Today publishes a bimonthly magazine providing trusted information on a wide scope of issues related to fertility and infertility.

Resolve: The National Infertility Association
www.resolve.org
Website dedicated to covering all aspects of infertility, from emotional distress to legal rights.

YoungCancerSpouses
www.youngcancerspouses.org
Provides support for young married couples that are facing cancer on topics of medical care, relationships, financial challenges, and transitions.

Back to top

Scholarships and Financial Aid

Cancer Survivors' Fund
www.cancersurvivorsfund.org
Provides scholarships to cancer survivors, as well as prosthetic limbs to disadvantaged young adults.

Surviving and Moving Forward
www.thesamfund.org
Website for young adult cancer survivors that provides opportunities for grants, scholarships, and other financial support.

The Ulman Cancer Fund for Young Adults
www.ulmanfund.org
Organization with a mission of educating, enriching, and connecting young adults affected by cancer.

Back to top

Organizations

American Cancer Society
www.cancer.org
The American Cancer Society is the nationwide community-based voluntary health organization focused on eliminating cancer through a synergy of research, education, patient service, advocacy, and rehabilitation.

Candlelighters Childhood Cancer Foundation
www.candlelighters.org
Offers a voice for childhood cancer families and survivors to the general public, medical community, jobs, schools, and media.

The Childhood Brain Tumor Foundation
www.childhoodbraintumor.org
Organization developed by families and friends of children afflicted by brain tumors devoted to a mission of improving quality of life, raising awareness, and promoting brain tumor research.

Hope Street Kids
http://hopestreetkids.org
Hope Street Kids is a children's initiative designed to end childhood cancer through advocacy and education.

Lance Armstrong Foundation
www.livestrong.org
Founded in 1997 by cyclist and cancer survivor Lance Armstrong, this nonprofit organization provides inspiration and a strong community support group, as well as other resources, for those affected by cancer.

The Leukemia and Lymphoma Society
www.leukemia.org
The Leukemia & Lymphoma Society is the largest voluntary health organization in the world with a mission to fund blood cancer research, education, and patient care.

Lombardi Comprehensive Cancer Center
http://lombardi.georgetown.edu
Lombardi Comprehensive Cancer Center is dedicated to providing quality care through the Childhood Cancer Survivorship Program to cancer survivors in Washington DC and the greater surrounding area.

The National Cancer Institute
www.cancer.gov
A part of the federal government, The National Cancer Institute is the nation's leading research and development center in the fight against cancer.

The National Children's Cancer Society
www.nationalchildrenscancersociety.org
Dedicated to improving quality of life of cancer survivors by providing financial assistance, advocacy, support services, and education.

National Coalition for Cancer Survivorship
www.canceradvocacy.org
Oldest survivor-led cancer advocacy organization in the country with a focus on empowering survivors through knowledge and advocating for nationwide quality cancer care.

Office of Cancer Survivorship
http://dccps.nci.nih.gov/ocs
A part of the U.S. National Institutes of Health, the Office of Cancer Survivorship provides the most up-to-date and recent information and research on survivorship issues.

Prevent Cancer Foundation
www.preventcancer.org
Prevent Cancer Foundation is dedicated to cancer prevention and early detection through research, education, and community outreach to all populations.

Tracy's Kids
http://tracyskids.org
Through art therapy, Tracy's Kids is dedicated to ensuring that each child is emotionally equipped to fight cancer and prepare for the time that he or she is cancer free.

Back to top

Survivorship Information

Beyond the Cure
www.beyondthecure.org
Program devoted to helping young cancer survivors and their parents transition into their new life after cancer by providing information and resources regarding all aspects of daily life.

Cancer Survivors Online
www.cancersurvivors.org
Website with free cancer related information, support, and resources.

Cancer Survivors Project
www.cancersurvivorsproject.org
An international community of long-term cancer survivors working together to improve the lives of cancer survivors by making available information on late effects and preventative care.

Childhood Cancer Survivor Study
http://www.stjude.org/ltfu
Long term follow up study for childhood cancer survivors conducted by St. Jude Research Hospital. Website includes published research and information from this ongoing study.

CureSearch
http://www.curesearch.org
A combined effort of the National Childhood Cancer Foundation and the Children's Oncology Group, Curesearch.org provides a wealth of educational resources and detailed information specific to each type of cancer.

Long-Term Follow-Up Guidelines for Pediatric Cancer Survivors
www.survivorshipguidelines.org
Provides well-researched follow-up recommendations for screening and management of late effects for childhood cancer survivors.

Pediatric Oncology Resource Center
www.acor.org/ped-onc
Online database with resources on family support, cancer information, and survivorship.

Back to top