Patient & Family Resources
Parent Link
Lombardi Cancer Center's own parent-run support organization that provides a "link" for parents of newly diagnosed children with parents who have been through the diagnosis and treatment of their child. Parent Link sponsors and monitors the Lombardi Children's Cancer Online Support Group. Also, contact Marilyn Eichner at marilyneichner@verizon.net
Local Support Organizations:
Candlelighters Childhood Cancer Foundation:
National office - http://www.candlelighters.org/
National Capital Chapter - http://www.dccandlelighters.org/
Casey Cares Foundation - http://www.caseycaresfoundation.org/
Hemophilia Association of the Capital Area - http://www.HACAcares.org
Leukemia & Lymphoma Society:
National office -
http://www.lls.org (National office)
National Capital Capter - http://www.lls.org/nca
Sickle Cell Disease Association of America (SCDAA) - http://www.sicklecelldisease.org
Sickle Cell Association of the National Capital Area - http://www.scancainc.org
Special Love for Children with Cancer - http://www.speciallove.org/
Starlight Children's Foundation - http://www.starlight.org/
Fertility Information:
Fertile Hope - http://www.fertilehope.org/
Fairfax Cryobank - http://www.fairfaxcryobank.com
Medical Information:
Cure Search - http://www.curesearch.org/
National Cancer Institute - http://www.cancer.gov/cancerinfo/types/childhoodcancers
National Heart, Lung and Blood Institute (NHBLI) - http://www.nhlbi.nih.gov
Siblings:
Supersibs - http://www.supersibs.org/
Summer Camps:
Camp Fantastic (Special Love for Children with Cancer) - http://www.speciallove.org/
Camp Sunshine - http://www.campsunshine.org/
First Descents (kayaking camp for young adults) - http://www.firstdescents.org/cms/
Hole in the Wall Gang Camp - http://www.holeinthewallgang.org
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