End of Life Decisions

Resource Guide

Advanced Cancer - Living each day
http://www.cancer.gov/about-cancer/advanced-cancer
This online resource was written to help persons who are struggling with advanced or terminal disease.

Before I Die - PBS Online
www.thirteen.org/bid/issues.html
Before I die: Medical Care & Personal Choices….a PBS online program that explores the medical, ethical, and social issues surrounding end-of-life care.

Cancer Care - End of Life Concerns
www.cancercare.org/get_help/special_progs/end_life.php 
To help patients and family members access quality care throughout their cancer experience - especially at the end of life by offering a safe, supportive environment to explore their changing physical, emotional, and spiritual needs.

Growth House
www.GrowthHouse.org
This award-winning website provides resources for life-threatening illness and end-of-life care. Its primary mission is to improve quality of life for patients through public education and global professional collaboration.

Hospice and Palliative Care Organizations

Hospice Association of America
www.nahc.org/HAA/ 
Offers a consumer guide, hospice facts, a hospice bill of rights, and listings by state of member organizations to help you find local services.

Hospice Net
www.hospicenet.org/html/without_meds.html
Provides advice on how to relieve pain without the use of medications.

National Association for Home Care & Hospice http://www.nahc.org/consumer-information

59 C Street NE, Stanton Park
Washington, DC 20002
(202) 547-7424
Information on how to choose providers for home care and hospice care. Also includes a comprehensive database of more than 33,000 home care and hospice agencies.

National Hospice and Palliative Care Organization
www.caringinfo.org
Helpline: 800-658-8898
The NHPCO is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for dying patients and their loved ones. They offer information on local hospice and palliative care programs across the country. Go to: http://www.nhpco.org/Directory/ to search for a hospice in your area.