Pediatric Hematology Oncology, Blood and Marrow Transplantation Center
Foundations and Other Societies
The American Brain Tumor Association
The American Brain Tumor Association exists to eliminate brain tumors and to meet the needs of patients and families. Their web site can be found at www.abta.org. Within the ABTA web site, find help in their "Support Services" section.
Candlelighters Childhood Cancer Foundation
The Candlelighters Foundation is an international nonprofit organization dedicated to educating, serving, supporting and advocating for families of children of cancer, survivors of childhood cancer, and the health care professionals who care for them. For more information contact their National Toll-free Line at 800-366-2223 or visit their web site at www.candlelighters.org.
The Leukemia and Lymphoma Society
The Leukemia & Lymphoma Society's mission is to cure leukemia, lymphoma, Hodgkin's disease, and myeloma, and improve the quality of life of patients and their families. The Society has a web site at www.leukemia-lymphoma.org, and it contains educational materials, publications and some information on various patient services. It seems, however, the most effective way to tap into their connections and resources is to directly contact the local chapter, here in the DC Metro area at 703-960-1100.
Lymphoma Research Foundation of America (LRFA)
The LRFA creates, promotes and supports high quality research resulting in more effective, safer treatments and the ultimate cure for lymphoma. The Foundation also provides a comprehensive slate of educational and emotional support programs for lymphoma patient and their families. Their web site, www.lymphoma.org, is a comprehensive lymphoma site, providing everything from basic facts to grassroots advocacy to clinical trials information.
National Brain Tumor Foundation
NBTF is a national not-for-profit health organization dedicated to providing information and support for brain tumor patients, family members, and healthcare professionals, while supporting innovative research into better treatment options and a cure for brain tumors. The NBTF has a great web site at www.braintumor.org. This site's goal is to provide objective information regarding treatment options and community resources so patients and families can make decisions best for them, provide opportunities to connect with other patients, families and providers, and provide hope to all effected by this disease. Although not geared specifically for pediatric cancer, it's packed with resources, chat rooms, and valuable links. This organization may also be contacted by phone at 1-800-934-CURE.
National Childhood Cancer Foundation
The National Childhood Cancer Foundation is dedicated to reducing the devastating impact of cancer on infants, children, teens and young adults by supporting clinical and laboratory research on cancer causes, treatments, and cures, and by education and advocacy for the needs of children with cancer and their families. Their web site, at www.nccf.org, provides general information, legislative updates as well as inspiration from other children and families who've experienced cancer. If you'd like information but don't have web access, call 1-800-458-6223.
The National Children's Cancer Society
The mission of The National Children's Cancer is to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, education and prevention programs. The NCCS runs a program called the Pediatric Oncology Program or POP. The goal of POP is to help families who have a child with cancer. The program offers financial assistance, emotional support and advocacy. For more information call 1-800-532-6459 or visit www.children-cancer.com. This web site also contains stories, many valuable resources, and links.
National Coalition for Cancer Survivorship
The National Coalition for Cancer Survivorship is a volunteer group concerned by issues faced by people with cancer and people who have recovered from cancer. Their website, www.cansearch.org, details public health and policy issues, conferences and events, and media alerts. Provides survivors and patients with a step-by-step guide to the cancer resources found on the web. The NCCS can also be reached by phone at 1-877-NCCS-YES (1-877-622-7937) or (301) 585-2616.
Pediatric Oncology Group
The Pediatric Oncology Group (POG) is an NCI-sponsored clinical trials cooperative group of institutions and individuals dedicated to controlling cancer among children and adolescents. They aim to cure every new patient and strive to assure optimal quality in survival. Their web page, www.childrensoncologygroup.org, provides a wide variety of information on their efforts.
